More than two years after the Government committed to adding SMA to newborn testing, families are still waiting ...

A couple whose son died from a rare genetic condition are encouraging others to take part in screening which they say could ...

What is SMA? The rare genetic condition that Jesy Nelson’s twins have - Former Little Mix star revealed her twin daughters had been diagnosed with Spinal Muscular Atrophy (SMA) Type 1 ...

"Monumental" is how Ashley E. Webb, MD Assistant Professor, Department of Pediatrics, Division of Child & Adolescent Neurology Neuromuscular Program Director, UTHealth, University of Texas Health ...

The mother of a four-year-old boy with a rare muscle disease says screening newborn babies for the condition could "save ...

Jesy Nelson noticed worrying signs about her twin daughters’ Ocean Jade and Story Monroe’s health, weeks before they were diagnosed with Spinal Muscular Atrophy Type 1.

Spinal muscular atrophy (SMA) is a genetic neuromuscular disease affecting specialized nerve cells that control voluntary muscle movement, according to the Muscular Dystrophy Association (MDA). It can ...

"Managing pain in patients with SMA begins with the recognition that there are predictable etiologies leading to pain in SMA and investigating them during each medical visit is important to implement ...

LITTLE Mix star Jesy Nelson has revealed that her baby twins have been diagnosed with a severe form of Spinal Muscular Atrophy. In a heart-breaking Instagram post, the singer said her daughters could ...

Former Little Mix singer Jesy Nelson is dealing with yet another heartbreaking truth. The singer and her longtime fiancé Zion Foster have called it quits. The unfortunate news comes just weeks after ...

Little Mix alum Jesy Nelson has reportedly split from fiancé Zion Foster just two weeks after sharing their 8-month-old twin ...