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Dec 20, 2024 · The journey to end CF isn't a straight line. It's an evolving map with many paths and unique challenges. It requires an ambitious research agenda to accelerate treatments and drug development for the underlying cause of the disease, and ultimately deliver a cure.
FDA Approves New, Once-a-Day CFTR Modulator for People With CF
Dec 20, 2024 · A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that have not been approved previously for any other CFTR modulator.
Intro to CF - Cystic Fibrosis Foundation
Cystic fibrosis is a genetic disorder that affects the lungs, pancreas, and other organs. Keep reading to learn how to treat and live with CF. Overview of CF Read a quick guide about cystic fibrosis Cystic fibrosis is a genetic disorder that affects the …
About Us - Cystic Fibrosis Foundation
The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.
Adult With CF - Cystic Fibrosis Foundation
You may have a lot of questions, and may not know where to start. While there is a wealth of information available, we pulled together a few of the key things you should know, and sources of help and support, right here on this page. Keep reading. You're in the right place.
Get Help With CF Foundation Compass - Cystic Fibrosis Foundation
Compass is a personalized, one-on-one service that provides people living with cystic fibrosis and their families a partner in dealing with challenges related to life with CF, no matter where you are in your CF journey.; AIRS-accredited Compass case managers help with complex challenges, including understanding insurance basics, troubleshooting …
About Cystic Fibrosis
Cystic fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. There are close to 40,000 children and adults living with cystic fibrosis in the United States (and an estimated 105,000 people have been diagnosed with CF across 94 countries), and CF can affect people of every racial and ethnic group.
Your CF Care Team - Cystic Fibrosis Foundation
Because cystic fibrosis is a complex disease, it requires a team approach with you or your child at the center. Your CF care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Our Mission - Cystic Fibrosis Foundation
The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.
Support - Cystic Fibrosis Foundation
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.